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DisabilityVoice Alert-- 03/08/2010 Wisconsin Marriage Penalty Bill Pushing Forward and National Marriage Penalty Teleconference     Click here for more detailed info   Article Posted By Timothy A Carey By Timothy a Carey -March. 08, 2010

ADA

Disabled worshippers struggle as many churches lack access ATLANTA — Among the most humbling moments being confined to an electric wheelchair came when Shawana Bulloch realized it could prevent her from attending services at her Savannah church. . . .  More Article (Article on DisabilityVoice, Saturday, Feb. 27, 2010) Article Posted By Timothy A Carey And By Dionne Walker • The Associated Press • Jan. 14, 2010   View Entire Article  ::: Go to Political Section

The World Around Us

Rolling sea to sea On the verge of being evicted from his home in 2008, Matt Eddy hit the road, leaving his native Lynn for California. But Eddy was not running from bill collectors. He was traveling to raise awareness - and money - for people in situations similar to his. Severely disabled with Duchenne muscular dystrophy, Eddy traveled more than 3,000 miles over 119 days in his motorized wheelchair from Boston to the Golden State. . . . This summer Eddy and Steenbruggen plan to make the cross-country trek again, leaving on June 5 from Red Rock Park, which overlooks the Atlantic Ocean in Lynn. . . . More Article

(Article on DisabilityVoice, Friday, Feb. 12, 2010) Article Posted Here By Timothy A Carey By Bosten Globe - Maureen Mullen - Feb. 04, 2010  The Entire Article ::: Go to Socialization Section :::

Medicine in Entertainment Heroes, Hope & Hollywood

How a father led a quest to discover a treatment for his critically ill children, and ended up the subject of a major motion picture

Most anybody who hears John Crowley’s story will will call him a hero. It’s a logical label for a man who led a quest to develop a treatment to stop the disease killing two of his young children. The Crowley family’s incredible story has been chronicled in the media, a book and now a major Hollywood feature film. “Extraordinary Measures” . . . More Article (Article on DisabilityVoice, Trusday, Feb. 04, 2010) Article Posted By Timothy A Carey By Quest Magazine- Tara Wood -Dec 31, 2009 ::: View The Entire Article ::: Go to Health Section

Health Care Judge: Medical Care for Baby Isaiah Can Continue
Disabilityvoice Speaks: I think this article is very interesting and brings up many questions. Is this how people with disabilities will be treated when and if we have Universal Healthcare? They are trying to terminate the life of a child despite objections from both parents. This is supposedly because the child's life will not be worth anything. How can anyone say whose life is worthwhile? I have Muscular Dystrophy. Will they someday say children born with Muscular Dystrophy will not have a worthwhile life?
A Canadian judge has ruled A Canadian judge has ruled that baby Isaiah James May's life support can continue for now while the lawyers re-explore what has turned into a controversial case of possible euthanasia. . . More Article (Article on DisabilityVoice, Friday , Jan. 29, 2010) Article Posted By Timothy A Carey By CBN- Jan. 28, 2010 ::: View The Entire Article ::: Go to Health Section

Medical Care New Contract for Incontinence and Selected Urological Supplies for Certain BadgerCare Plus and Medicaid Members

Wisconsin- has decided to go with one provider for Incontinence and Urological products for certain badgerCare Plus and Medicaid Members. Members will be required to go through J&B Medical Supply out of Michigan. Members will no longer be able to receive urological supplies (such as catheters, drainage bags, or lubricant) or incontinence supplies (such as diapers, pull-ons, and pullups) through their current providers. Please refer to the following document for more detailed information. Go to: Info Document J&B Medical Supply Website (Article on DisabilityVoice, Thursday, Jan. 14, 2010) Article Posted By Timothy A Carey By Department of Health Services ::: ::

Medical Care Long-Term Care Options in Wisconsin
There is a change coming in how people with disabilities receive their long-term care. The following document describes changes and a meeting for Winnebago County. All counties will be changed soon. Your county maybe next. go to: Info Document (Article on DisabilityVoice, Thursday, Jan. 14, 2010) Article Posted By Timothy A Carey By ::: :::

Medical Care IRIS (Include, Respect, I Self-Direct) Waiver Program Continues To Grow

The number of participants in the IRIS waiver continues to grow. To see an informative map that includes county breakdowns of referrals to IRIS and IRIS Independent Consultants, go to: http://www.arc-wisconsin.org/resources/irisreferralmapdecember312009.pdf Also, there will be an opportunity to learn more about IRIS at a presentation in Mineral Point on January 26, 2010. For more information on this presentation, go to: http://www.arc-wisconsin.org/resources/irispresentationhodancenter.pdf (Article on DisabilityVoice, Thursday, Jan. 14, 2010) Article Posted By Timothy A Carey By Jim Hoegemeier- The Arc-Wisconsin Disability Association- Jan. 12, 2010 ::: :::

Newsletter New DisabilityVoice Newsletter- 01/06/2010

Please take a look At the newest DisabilityVoice Newsletter. For more convenience you can have this newsletter delivered to your e-mail inbox. To do this just register on DisabilityVoice. Also, don't forget to check out past newsletters from the DisabilityVoice Main Menu. Current Newsletter DisabilityVoice Registration (Article on DisabilityVoice, Wednesday, Jan. 13, 2010) Article Posted By Timothy A Carey By Timothy A Carey- Jan. 06, 2010 ::: View Current Newsletter ::: Go to Newsletter Section

Medicine Exon Skipping Drug Delivers Again Early results show that when AVI4658 is delivered system-wide through the bloodstreams of boys with DMD, it’s safe and increases dystrophin production.

Interim results from a human clinical trial of the exon-skipping compound AVI4658 in boys with Duchenne muscular dystrophy (DMD) show that when the compound is delivered to the whole body via the bloodstream. . . More Article (Article on DisabilityVoice, Monday, Jan. 11, 2010) Article Posted By Timothy A Carey By Margaret Wahl- Quest Magazine- Dec. 23, 2009 ::: View The Entire Article ::: Go to Health Section

Socialization

UD dance class changes lives for people who are wheelchair bound New Castle, Del. - For the moments she spends on the dance floor, 28 year-old Lindsay is in her own world and forgets that she lives with Cerebral Palsy and uses a wheelchair. “When I am on the dance floor I feel like I am a princess with my prince,” Lindsay, of Bear, said. “It makes me feel like I don’t have a disability. I feel like I am using my legs and I am no longer in my wheelchair.” Lindsay has been taking ballroom dance lessons at the University of Delaware for the last two years . . . More Article

(Article on DisabilityVoice, Monday, Jan. 11, 2010) Article Posted Here By Timothy A Carey By GateHouse News Service- Dec. 14, 2009  The Entire Article ::: Go to Socialization Section :::

Medicine New DMD Care Recommendations After a year of planning, new recommendations for physicians caring for DMD patients have been released

A comprehensive Set of clinical care recommendations for the diagnosis and management of Duchenne muscular dystrophy (DMD) is now available to medical professionals and families. The complete recommendations, . . . More Article (Article on DisabilityVoice, Monday, Jan. 11, 2010) Article Posted By Timothy A Carey By Amy Labbe- Quest Magazine- Dec. 03, 2009 ::: View The Entire Article ::: Go to Health Section

Assistive Gaming- DisabilityVoice Speaks: Cory was a friend of Timothy Carey's of DisabilityVoice.  Rest in Peace Dear Corey Corey "Dis" Krull was a professional writer, disabled gamer, and most of all, good friend. Saturday, December 12, 2009, we lost Corey to the afterlife. I've been pretty fortunate in my life, having only had three people close to me ever pass on. Death is not something I'm used to dealing with yet... if anyone really does get used to it. But I never expected that this would happen. The last time I spoke to him, he told me about his hospital stay and that it was all over, and he was on his road to recovery. I told him to take it easy, that his health was more important than AbleGamers. . . .More Article (Article on DisabilityVoice, Tuesday, Dec. 29, 2009 ) Article Posted By Timothy A Carey By Steve Spohn- Able Gamers   - Dec 17, 2009 View The Entire Article ::: Go to Assistive Tech Section :::

Legislative

DisabilityVoice Speaks: Wisconsin Representative Roger Roth has been a advocate for people. He drafted a bill against the Medicaid Marriage Penalty. This penalty keeps people with disabilities on Medicaid from getting married. He also has been concerned about the cuts to private duty nursing and changes regarding Pre-Vocational services.

State Rep. Roger Roth is 7th Republican to join House race against Democrat Steve Kagen GREENVILLE — Despite the crowded field of Republican contenders in northeastern Wisconsin’s 8th Congressional District, state Rep. Roger Roth says his only opponent in the race is Democrat Steve Kagen. . . . Roth, a 31-year-old Grand Chute homebuilder and two-term lawmaker, is counting on his legislative experience, military background and name identification to help him . . .  More Article (Article on DisabilityVoice, Wednesday, Dec. 2, 2009) Article Posted By Timothy A Carey And By J.E. Espino • Gannett Wisconsin Media • Dec. 1, 2009   View Entire Article  ::: Go to Political Section

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 The News for People with Disabilities 

ADA

Letters: Bars, restaurants must think of disabled patrons Recently, it seems many bars and restaurants are installing bar-height tables with chairs. While these may be suitable for many patrons, they're impossible or difficult to use by many others. This is especially true for people using wheelchairs or people who may have balance or mobility difficulties. Since 1990, with the passage of the Americans with Disabilities Act, businesses have an obligation to remove architectural barriers (physical features) that limit or prevent people with disabilities from obtaining the goods or services that are offered. . . .  More Article (Article on DisabilityVoice, Tuesday, Dec. 29, 2009) Article Posted By Timothy A Carey And By Bruce Makholm• Disabled Citizens Inc. board of directors, Neenah • Dec. 15, 2009   View Entire Article  ::: Go to Political Section

Relationships and Legal

Disabled mom fighting to keep her son Can a quadriplegic woman be a good parent? Her ex-boyfriend filed a custody suit that says no Kaney O'Neill knows she has limits as a mother. The 31-year-old Des Plaines woman cannot walk, move her fingers independently or feel anything from the chest down. A decade ago, O'Neill was a Navy airman apprentice when she was knocked from a balcony during Hurricane Floyd, leaving her a quadriplegic. When she discovered she was pregnant last December, she felt fear and joy, a journey the Tribune chronicled in August. She quickly embraced the opportunity to raise a child, feeling she had the money and family support to make up for her paralysis. David Trais, her ex-boyfriend and the 49-year-old father of their now 5-month-old son, disagreed that she was up to the challenge. . . . More Article

(Article on DisabilityVoice, Tuesday, Dec. 22, 2009) Article Posted Here By Timothy A Carey The forgot By Sara Olkon- Chicago Tribune- Dec. 20, 2009  The Entire Article ::: Go to Socialization Section ::: Go To Legal Section

Medicine Stem Cell Based Treatment For Spinal Muscular Atrophy Receives Orphan Drug Designation.

California Stem Cell, Inc And Families Of Spinal Muscular Atrophy Reach Significant Milestone In Development Of Motor Neuron Treatment For SMA IRVINE, Calif. (December 8, 2009) – California Stem Cell, Inc. (CSC) and Families of Spinal Muscular Atrophy (FSMA) announced today that the FDA has granted orphan drug designation to MOTORGRAFTTM, a stem cell-derived motor neuron product, for the treatment of Spinal Muscular Atrophy (SMA). Orphan drug designation, granted by the FDA Office of Orphan Products Development, provides several incentives to companies in the private sector developing novel drugs or biologics to treat diseases with relatively small market potential. . . . More Article (Article on DisabilityVoice, Monday, Dec. 21, 2009) Article Posted By Timothy A Carey By Family's of Spinal Muscular Atrophy- Dec. 08, 2009 ::: View The Entire Article ::: Go to Health Section

Health Heart Disease Myths

MADISON, WI - Think you know about your heart? Your doctor may disagree. Cardiovascular medicine faculty at the University of Wisconsin School of Medicine and Public Health say they've heard plenty of myths about heart disease - and patients who believe them may be at increased risk because of the misinformation. To shine some truth on the subject, these cardiologists have provided a quick list of some of the most common myths . . . . More Article (Article on DisabilityVoice, Sunday, Dec. 13, 2009) Article Posted By Timothy A Carey By UW Health -Nov. 06, 2009 ::: View The Entire Article ::: Go to Health Section

Health & Medical H1N1 Swine Flu Inoculation Mandatory? Nurses and Doctors Push Back

DisabilityVoice Speaks: I was very skeptical when I was told there is mercury in the flu vaccine and the H1N1 vaccine. In High School and College chemistry class  the professors would preach about how careful you must be not to come in contact with mercury in anyway. So I had to I checked it out for myself. I now do believe there is mercury in these vaccines. It is an a compound called Thimerosal. It is used as a preservative and it can also be found in many products including contact lens solution and cosmetics. I have provided a news article regarding the flu vaccines. I have also included many articles on Thimerosal, mercury, and more on the vaccines. If a flu shots still contain Thimerosal next year, then I probably will not be taking my flu shot next year it's home. Please make your own educated decision.

There are a lot of disturbing stories that can be found when researching the H1N1 swine flu in regards to the vaccination and in some cases it being forced on the public. . . . More Article ADDITIONAL LINKS http://www.epa.gov/mercury/effects.htm http://www.thimerosal-news.com/ http://www.youtube.com/watch?v=_mwP65FJhKk&feature=player_embedded# http://www.youtube.com/watch?v=RbcngSD0K90&feature=response_watch http://www.youtube.com/watch?v=0Y1VTYzLYy4&feature=related http://en.wikipedia.org/wiki/Thiomersal http://en.wikipedia.org/wiki/Mercury_poisoning http://archives.cbc.ca/environment/pollution/clips/6459/ http://en.wikipedia.org/wiki/Minamata_disease (Article on DisabilityVoice, Monday, Nov. 23, 2009) Article Posted By Timothy A Carey By Rick Porter- 2009 ::: View The Entire Article ::: Go to Health Section

 

The World Around Us

Don't neglect your fellow human being; many isolated through circumstance Humboldt Beacon-- 04/01/2009 We all know that life is pretty tough out there. People who have held the same job for years are getting laid off, retirement funds are being desecrated, stocks are volatile, and houses impossible to sell or buy. As bad as it is, there is something people all around us are experiencing that is much worse. I'm talking about the people who are “social isolates” who are experiencing . . .More Article

(Article on DisabilityVoice, Friday,  May 01, 2009) Article Posted By Timothy A Carey From Humboldt Beacon Story View The Entire Article ::: Go to Socialization Section

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